Shoutout To The People Who Desperately Want To Move Out But Can't Because They Have Medium/high Support

Your friends and family with chronic pain aren't doing well.

Yes, even the ones that say they are.

Yes, especially the ones that are complaining and lashing out already.

Chances are high that however bad they will admit things are it's actually worse. By a lot.

We're conditioned to be "okay". If we're breaking down at non scheduled times we aren't coping well. I promise.

Your sibling/partner/bestie/parent who is breaking down without preamble on a Tuesday is suffering. Be kind. We're sorry.

Anyway,

You deserve family who try to understand your illness.

You deserve family who try to accommodate your illness.

You deserve family who respect your decisions regarding your illness.

You deserve family who nicely listen to you vent about your illness.

chronic illness really makes the weirdest ‘would you rather’ scenarios come to life.

like, would you rather: show up to christmas with no presents for anyone or show up having not showered for a week?

would you rather: feed yourself or do the dishes?

you can choose both but your penalty is to spend an unknown amount of time bedbound afterwards.

You should be able to say “don’t touch me” to anyone ever in any context and not have it be considered in the realm of surprising or insulting imho if we ever needed to normalize something it’s this

People eventually get diagnosed BECAUSE they are already disabled and struggling. The symptoms don't appear AFTER the diagnosis. So don't expect everyone without a professional diagnosis to be basically fine. That makes no sense.

You don't owe anyone an explanation of your condition/disability, how or when it started, what meds you take, what tests you've undergone, or literally anything about your health!

It doesn't matter if it's a stranger, a friend, or a relative.

It's your life and you have a right to privacy.

Don't let them guilt you into answering invasive questions.

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

How do people keep replying when friends ask how are you? I hate being so negative but often it's my reality like I couldn't do a lot of things today but I'm trying and nothing has changed!! I don't want to push them away by being the one who's always sick

it's funny that people act like disabled people are such a downer and negative and pessimistic for acknowledging their health conditions when we have to be the most optimistic suckers on earth to repeatedly go to drs with the expectation of actually recieving treatment. did i say funny sorry i meant soul destroying

giving birth sucks tbh. not only do you and the baby you’re birthing almost die, usually you shit yourself and often you tear your taint. then you have to push an organ out of your body (placenta) and if even a little of that remains in your body, you can hemorrhage to death or develop an infection that essentially rots your body from the inside out. even if you had a relatively “easy birth”, you bleed for weeks on end. even after that stops, your body and brain is changed for the rest of your life, the pregnancy leeched minerals from your bones, that can cause osteoporosis later. minor urinary incontinence is not uncommon, brain scans of people who gave birth show permanent changes in their brain, you’re never quite the same.

I say all of this not to say giving birth is disgusting but it is a harrowing and visceral experience. society downplays how fucking awful it is and makes it out to be a ~magical~ experience but it isn’t a magical transformative experience for everyone. it can be an extremely traumatic experience for someone who wanted to carry a pregnancy to term, much more so for someone who did not want to be pregnant in the first place or someone who knows their baby won’t survive the birth. anyway, abortion is a right. pregnancy and birth aren’t just inconvenient, it’s fucking awful.