like yeah. you're not a bad person just because you're disabled. but also you're not a good person for being abled. you're not a good person for being abled. it doesn't make you better than disabled people. you're not a good person for being abled. internalise it. it's not a reward. you did nothing to deserve this - because health is not something that people "deserve" or don't. it's something they have or not, for any number of reasons
chronic illness really makes the weirdest ‘would you rather’ scenarios come to life.
like, would you rather: show up to christmas with no presents for anyone or show up having not showered for a week?
would you rather: feed yourself or do the dishes?
you can choose both but your penalty is to spend an unknown amount of time bedbound afterwards.
Had an appointment with my neurologist today. Guess who went there with a stupid spark of hope to be taken seriosly this time and ended up crying ugly in the parking lot 🙃🙃
to me, the universal trust in doctors from people who haven't experienced medical mistreatment/neglect is akin to the trust that upper middle class and white people have in the police. they haven't experienced the mistreatment themselves so they assume it doesn't exist. they assume that every doctor or police officer is only in it for protecting people. they assume that the people who made the rules for these organisations are somehow all-knowing and know the truth about what is morally correct for society. the difference is that there actually is such thing as a good doctor, while there is no such thing as a good cop.
I need every single person to understand how horrible tumblr’s tagging system is
I go into the tag for epilepsy and its all flashing lights. We can’t use our own tag because people without epilepsy fill it up with improper warnings.
Use ‘flashing’ in place of ‘epilepsy’ in your tags. You aren’t warning people of epileptics, you’re warning us of flashing lights. Please please tag properly. Epileptics say this endlessly and constantly and it’s ignored. You are risking lives by doing this.
Here’s proof of what I mean:
Please understand that not every marginalized person is going to have a list of peer reviewed sources and accurate statistics proving the bigotry they face in their daily life and you sometimes just have to decide to believe people when they tell you they are suffering
People eventually get diagnosed BECAUSE they are already disabled and struggling. The symptoms don't appear AFTER the diagnosis. So don't expect everyone without a professional diagnosis to be basically fine. That makes no sense.
what if ablebodied people believed disabled people when they said stuff exhausts/hurts them, even if said ablebodied people didnt understand or couldnt relate. lol
One of the most dangerous things in the world is not being able to say no to people because you don’t want to upset them or dissapoint them. This will completely ruin your life in every way possible, at work, in your private life, your sex life and your friendships. It’s a way of removing your own consent in your own decisions and go against your wishes, it is always a crime against yourself. Let yourself have a say. Upsetting people is better than traumatizing yourself.